Social, Ethical, and Health Policy Issues in the Care of Children with Major Craniofacial Conditions

Alkire B, Hughes CD, Nash K, Vincent JR, Meara JG (2011) Potential economic benefit of cleft lip and palate repair in sub-Saharan Africa. World J Surg 35(6):1194–1201PubMedCrossRef
Aspinall CL (2010) Anticipating benefits and decreasing burdens: the responsibility inherent in pediatric plastic surgery. J Craniofac Surg 21(5):1330–1334PubMedCrossRef
Austin AA, Druschel CM, Tyler MC, Romitti PA, West II, Damiano PC, Robbins JM, Burnett W (2010) Interdisciplinary craniofacial teams compared with individual providers: is orofacial cleft care more comprehensive and do parents perceive better outcomes? Cleft Palate Craniofac J 47(1):1–8PubMedCrossRef
Baker SR, Owens J, Stern M, Willmot D (2009) Coping strategies and social support in the family impact of cleft lip and palate and parents’ adjustment and psychological distress. Cleft Palate Craniofac J 46(3):229–236PubMedCrossRef
Beauchamp T, Childress J (1994) Principles of biomedical ethics, 4th edn. Oxford University Press, New York
Berger ZE, Dalton LJ (2009) Coping with a cleft: psychosocial adjustment of adolescents with a cleft lip and palate and their parents. Cleft Palate Craniofac J 46(4):435–443PubMedCrossRef
Berger ZE, Dalton LJ (2011) Coping with a cleft II: factors associated with psychosocial adjustment of adolescents with a cleft lip and palate and their parents. Cleft Palate Craniofac J 48(1):82–90PubMedCrossRef
Bijma HH, van der Heide A, Wildschut HI (2008) Decision-making after ultrasound diagnosis of fetal abnormality. Reprod Health Matters 16(31 Suppl):82–89PubMedCrossRef
Black JD, Girotto JA, Chapman KE, Oppenheimer AJ (2009) When my child was born: cross-cultural reactions to the birth of a child with cleft lip and/or palate. Cleft Palate Craniofac J 46(5):545–548PubMedCrossRef
Blume CP, Henson TB (2011) An access to care study for the pre-surgical nasoalveolar molding and other treatments for cleft lip and palate. Dent J 128(7):639–645
Blumenfeld Z, Blumenfeld I, Bronshtein M (1999) The early prenatal diagnosis of cleft lip and the decision-making process. CPJ 36(2):105–107
Bosk CL (1992) All God’s mistakes: genetic counseling in a pediatric hospital. University of Chicago Press, Chicago
Botto LD, Robert-Gnansia E, Siffel C, Harris J, Borman B, Mastroiacovo P (2006) Fostering international collaboration in birth defects research and prevention: a perspective from the international clearinghouse for birth defects surveillance and research. Am J Public Health 96(5):774–780PubMedCrossRef
Boulet SL, Grosse SD, Honein MA, Correa-Villaseñor A (2009) Children with orofacial clefts: health-care use and costs among a privately insured population. Public Health Rep 124(3):447–453PubMed
Brand S, Blechschmidt A, Müller A, Sader R, Schwenzer-Zimmerer K, Zeilhofer HF, Holsboer-Trachsler E (2008) Psychosocial functioning and sleep patterns in children and adolescents with cleft lip and palate (CLP) compared with healthy controls. Cleft Palate Craniofac J 46(2):124–135PubMedCrossRef
Bunker JP (1970) Surgical manpower: a comparison of operations and surgeons in the United States and England and Wales. N Engl J Med 282:135PubMedCrossRef
Cassell CH, Mendez DD, Strauss RP (2012) Maternal perspectives: qualitative responses about perceived barriers to care among children with orofacial clefts in north Carolina. Cleft Palate Craniofac J 49:262–269, Epub 2011 Jul 8PubMedCrossRef
Chetpakdeechit W, Hallberg U, Hagberg C, Mohlin B (2009) Social life aspects of young adults with cleft lip and palate: grounded theory approach. Acta Odontol Scand 67(2):122–128PubMedCrossRef
Chuo CB, Searle Y, Jeremy A, Richard BM, Sharp I, Slator R (2008) The continuing multidisciplinary needs of adult patients with cleft lip and/or palate. Cleft Palate Craniofac J 45(6):633–638PubMedCrossRef
Churchill LR (1987) Rationing health care in America: perceptions and principles of justice. University of Notre Dame Press, Notre Dame
Corlew D (2010) Estimation of impact of surgical disease through economic modeling of cleft lip and palate care. World J Surg 34(3):391–396. doi:10.1007/s00268-009-0198-9 PubMedCrossRef
Damiano PC, Tyler MC, Romitti PA, Momany ET, Jones MP, Canady JW, Karnell MP, Murray JC (2007) Health-related quality of life among preadolescent children with oral clefts: the mother’s perspective. Pediatrics 120(2):e283–e290PubMedCrossRef
Demause L (1977) The nightmare of childhood. In: Gross B, Gross R (eds) The children’s rights movement. Anchor Press/Doubleday, New York, p 23
Dickeman M (1975) Demographic consequences of infanticide in man. Ann Rev Ecol Sys 6:107CrossRef
Divale WT, Harris H (1976) Population, warfare and the male supremacist complex. Am Anthropol 78:521CrossRef
Eng CM, Schechter C, Robinowitz J, Fulop G, Burgert T, Levy B, Zinberg R, Desnick RJ (1997) Prenatal genetic carrier testing using triple disease screening. JAMA 278(15):1268–1272PubMedCrossRef
Feragen KB, Borge AI (2010) Peer harassment and satisfaction with appearance in children with and without a facial difference. Body Image 7(2):97–105PubMed

Only gold members can continue reading. Log In or Register to continue

Oct 18, 2015 | Posted by in General Dentistry | Comments Off on Social, Ethical, and Health Policy Issues in the Care of Children with Major Craniofacial Conditions
Premium Wordpress Themes by UFO Themes